After Dad's Heart Attack

Monday, March 26, 2007

And finally...

Dad went home on Saturday, as they'd hoped. He was quite tired on Saturday evening so he didn't go to church that night, and he has spent the weekend getting caught up at home on newspapers and mail and defending his garden from deer. He took a couple of short walks (though not so short considering he just got out of the hospital!) on Sunday, using his walker just in case he needed it for balance. His life is rapidly returning to normal -- such a contrast from two years ago -- so thank you for all your prayers!

Saturday, March 24, 2007

Progress

Mom has been sending emails to everyone so most of you have the updates. Here's the follow up on the swallow test:

He passed!!!!! When I was there this afternoon they brought him a lunch tray, and about an hour later, a dinner tray. He ate moderately from the lunch tray, and passed up the dinner tray. It looked fairly good, so I ate it! Tomorrow the catheter comes out, and I should think the pic line, since he is eating. Then maybe he can come home sometime over the weekend.

Thanks for the prayers!

And here is today's summary:

We are awaiting word whether he will come home today (Saturday) or tomorrow. After coughing out his breathing tube in the ICUand sneezing out his feeding tube earlier this week, his pic line--the open line that went in under his collarbone--fell out yesterday as he was preparing to take a walk. But because that came out, they had to put in a regular IV, since no one is allowed to be in the hospital without one, in case of emergency. His catheter was also removed, so he feeling a lot of freedom. I think they only have a line attached to his IV when they are giving him fluids or meds through it.

He called this morning and told me that Dr. Backs was in the hospital but he hadn't seen him yet. I told him not to get his hopes up too high about going home today.

We are naturally thrilled that progress has been made even with Dr. Shear gone. Looks like this ordeal may end soon!

Thursday, March 22, 2007

Slow, slow, slow

Much as we'd all like to see Dad up and about and eating normally by now, the doctors are being more cautious. Here is Mom's email from Wednesday:

Richard called me this morning, unhappy to report that Dr. Shear had gone out of town until Monday. A Dr. Baxt will be seeing him in the meantime. Dr. Baxt said they were going to remove his tube gradually, over four days. I am not sure why he made that choice--too much fluid still coming up? From stomach or lungs? He won't be getting any food until then--not real food, that is. They also plan to remove the many, many staples from his stomach today.

He just called as I was writing this and told me a physical therapist came today and got him up into a chair. I guess he walked him about ten feet in his room, too. (I didn't know there were ten feet in his little room!) Richard wanted to take more of a walk but the therapist said they would do that tomorrow--he wants to do things slowly, too. Dr. Shear has mentioned several times that Dick is fragile, and I guess all of this is in keeping with that theory.

We later sorted out that he was talking about removing the stomach tube gradually. Yesterday they turned off the pump on the tube, and here is Mom's post from this morning:

Dick called me this morning. First he told me he wanted his walker, in case he needs it, and would I please go to the attic this morning and see if I could find it? (I did and I found it.) Then he said that the PA (I think) told him that Dr. Backs--I called him Dr. Baxt yesterday--might completely remove his ng tube to day and (horrors!) order a swallow test. Will you all please pray that if he has a swallow test he actually passes the whole thing the first time? I think it is spaced out over three days. The failure to pass the swallow test the last time was one of the things that led to his long hospitalization.

If our swallowing therapist from last time shows up, Dad needs to run away!! He asked Mom to pick him up to go to OLLI classes anyway -- that's as good an excuse as any. ;-)

Tuesday, March 20, 2007

Monday Update

Well - the big thing to report from yesterday was that Dad was moved OUT of ICU into a regular room again. They have him back on the fifth floor since his stomach problems are the main and real reason he went to Sinai in the first place. He is in room 514 this time.

He was approved to move pretty early in the evening - but then transport didn't actually show up until 7:30 pm. At that point Sarah, Katie, Mom and I were all with him and we decided we wouldn't leave until they moved him! We then stuck around until about 8:00.

Once again we will miss our friends in the ICU waiting room - but we are glad to be done with that now!!!

They did the upper GI series for Dad yesterday - finally! A week later! The only thing we know right now is that he has an ulcer (Stuuumack OOoollllser - You Can't Take it With You...) which they are treating with antibiotics. We also know that there is no blockage.

That is it. Dad seems to be in a really good mood - which is great! I wouldn't blame him if he was in a really crotchety mood. With any luck we will have him home in a few days.

Monday, March 19, 2007

My Two Cents

It was SO great to see Dad looking so much better!!! Katie and I spent most of the day on Saturday at the hospital - and it was VERY frustrating. He was really trying to communicate to us - and we had NO idea what he was saying. Well - not no idea - we figured out much of it... "I have to go to the bathroom." " Why am I tied?" and - most depressingly "When will they give me a sleeping pill?" Dad was VERY frustrated on Saturday - bored and uncomfortable - and I think when he finally asked for something to make him sleep it was just because he couldn't stand it anymore!!

So - what a nice surprise to see him sitting up and smiling on Sunday! We had noticed on Saturday that his restraints were long enough, and he was strong enough that if he sat forward enough he could reach his tube. He was doing this MOSTLY to scratch his itchy beard and uncomfortable cuff - but once we were gone, what was to stop him from taking the tube out altogether? I don't know how he could have coughed it up - since he had been coughing around it all day on Saturday... He says the hospital staff is too cautious, and I tend to agree. Sarah and I had already decided to put our foot down today if he was still intubated. Dad wasn't as patient as we were!!


As to the digestive system - in my opinion (again Dr. Amy here...) I think since he was feeling like he had to poop (medical term) on both Saturday AND Sunday - that means there must be SOMETHING moving - and probably in the right direction. Right?

We told Dad last night that if they need to move him out of ICU today to make sure he asks for the second floor. Mom has her OLLI (Old Lady Learning Institute - hee hee - sorry Mom, I couldn't resist!) classes today, they MAY want to move him before she gets in. I also told HER to make sure she has her phone charged and on when she is at school. Hopefully when we visit him today it will be in a real room - and tomorrow it will be at home.

Sunday, March 18, 2007

Sunday update from Mom

This has definitely been a good day for Richard! I went in about eleven to see him, and he was wide awake and he spoke to me. It took a few seconds for me to realize he didn't have his breathing tube in! He could talk! His nurse said that he had helped matters along himself--I said, "Did he pull it out?" and she said, "He says he coughed it out!" Whatever way it was removed, it's out and he was breathing this morning with a very uncomfortable oxygen mask, and later with just the little tubes going up his nose. Then she took his ng tube out for about an hour, just to give him a rest, and Dr. Shear asked that it go back into his nose rather than his mouth, so he would be more comfortable.

This afternoon he asked me if he could go for a walk, and I said he was still tethered to some of his tubes--his saline drip and his tpn feeding. I told his nurse he wanted to be up for a while, so she put him in a chair--with some help, I might add. She is Filipino, very tiny, and expecting a baby in July! After a little more than an hour he was threatening to put himself back to bed. His nurse was busy with her other patient and we almost had to hold him down--almost, but not quite. Finally she came back and put him down for a nap.

I told him I would be starting OLLI classes tomorrow and he said quite seriously, "I would like to go"--not wishfully, but like that was what he really intended to do. He is feeling much better, and I hope he doesn't have to stay in the hospital too much longer. He is so much stronger and better off than when he came out of ICU the last time that I am amazed. I do hope he can be out and about before he gets debilitated by spending too much time in bed!

Saturday, March 17, 2007

More Friday

I am frustrated... I wrote a super long post last night and it disappeared just when I went to post it. So I will just add on to what mom said.

Dr. Shear did NOT say they were unsure what caused the heart failure - he is unsure what caused the LUNG problems. They have been able to rule out MRSP or MSRA or MRSA - yeah, that's it... Which is a particularly nasty respitory infection. They also already ruled out the embolisim. He said that Dad was fine up until noon on Monday. And then suddenly his body responded to this dire pneumonia. He said is is possible - although highly unlikely - that Dad aspirated some vomit that then resulthed in the fluid in the lungs. What your body does when hit with something foreign in your lungs or whereever (like an infection) is flood you with fluids to flush out the irritant. Since Dad has congestive heart failure the influx of a tremendous amount of fluid caused the heart failure - which as we have known since this happened is NOT the same as a heart attack. Dr. Shear said that his heart is JUST FINE - or as fine as it was from before the incident. He said that the aspiration is not likely because Dad has a perfectly functioning gag reflex that is designed to prevent aspiration.

He is more concerned about making sure that things are moving through Dad's digestive system. We have known from previous experience that Dad's digestion is slow to recover from ANY tampering - and Dr. S doesn't know if it is passing stuff through, or just back up. Initially he was concerned by the amount of fluid from his stomach - but then the nurse said what was there was what had been collected ALL day - not just recently, and so Dr. S was more content with that.

He said that as far as he could see from the CAT scans (and they did a full body scan basically) was that there were no blockages, and that he should be able to pass things through - but what he can't see is if there is a section of the lower bowel that may not be working at all. He wants to put "contrast" into his line today to see if it is going all the way through... So I have visions of Dad peeing green in honor of St. Patrick's Day. Hee hee.

Dad is doing REALLY WELL. I don't know about last night - but as of yesterday at 3:15 he hadn't had any sedation since early in the am (4am to be exact). He seemed more awake when he was awake - and I was glad to know that he was probably listening to most of what Dr. Shear had to say since it was ALL good news.

Back to the lung thing - Dr. Shear was frustrated that they couldn't identify what it WAS - but that is mostly from a good science standpoint. Being able to identify it is not necessarily necessary to treat it - as long as the patient is responding to the treatment - which clearly Dad is. He wasn't coughing as much, and they have him at 35% O2 - which is great! He has progessively gone down on his O2 every day this week - which is what is needed to get him off the tubes. Before in the CICU we were told that he needed to be on 40% or less for a full day before they could take the tube out - projecting from that I would guess that since he has now been BELOW the 40% for 24 hours they CAN think about getting the tube out. That would be very nice.

Friday, March 16, 2007

Mom's Friday update

There was really not a lot of change in Richard's condition today, but Dr. Shear says he is improving. They have his oxygen support at 35%, which must be an improvement, and he is not very sedated. They started him on lasix again and he has had a good bit of output, but is still very swollen. His blood pressure was somewhat lowered but higher than ideal--I remember 148 as an upper number.

Katie and Sarah were both there for the 12:30 visit and Amy joined us by 2:30. At that time Dr. Shear came in and spent a long time talking to us about Dad's condition, giving us a good summary. He said they had done CAT scans of his chest, abdomen and pelvic regions and they all looked pretty normal, except for his lungs, of course. As we have said there are no blockages or embolisms, and his blood chemistry showed that there was no heart attack. He is puzzled about what caused the heart failure and said they have ruled out the usual causes--probably not aspiration, no embolism, and he said no MRSA, which was the bacteria he had in the CICU. He said that sometimes they can't figure out the cause of a problem, but as long as it heals up and goes away they have to be satisfied. He would like to know the cause, just as I would, because what is to prevent it happening again?

His stomach is healing up nicely. He said there was actually stomach tissue growing along the fistula, so I guess it had become part of the stomach and would never have healed up on its own.

He is concerned that stuff is not moving down out of the stomach. He says if there is a mechanical problem he could probably fix it with further surgery, but nobody wants to do that! He is hoping it will resume functioning on its own, but at the moment most of what is coming out of his stomach is coming out the ng tube. There is some bile in it, which I think he said indicated some movement from the abdomen.

He still wants to do a GI test and said he will schedule it for tomorrow.

Thursday Night Revue

The weather is crappy today and is supposed to turn crappier... Sarah and Katie were both talking about getting out of work early (or altogether) today to make it to the hospital at 2:30 (or earlier) and I may just do the same thing. The last thing I want to do is have to deal with a "wintery" mix late tonight.

Last night Katie and I were the only ones to stick around to the later visiting half hour. We planned to only pop in and then leave for the night, but Dad woke up while we were there - so we stuck around.

His numbers were looking good - with the exception of his blood pressure. He gets two readings on him monitor - one from a cuff and one from a finger tip line. The finger line was reading at about 117/60 but his cuff was reading at 150/90. They are giving him blood pressure medicine - but they weren't super worried about the numbers. Cherry - his nurse -said that if the two readings had BOTH read high, THEN she would have been worried. The high blood pressure is actually kind of a mixed blessing. They had taken him off his lasix (which dehydrates) to get his blood pressure back up. They should be able to start that up again today (allowing that he had a good night last night). The lasix should help to suck up the gunk in his lungs - which as far as we can tell is his primary problem at this point.

Cherry took another blood culture yesterday afternoon which she sent off to be tested for his "little bit septic" infection. We should get the results of that this morning.

They had him on 50% O2 all day yesterday too. He has been coughing - which is very distressing to us - because it is silent (the tube being IN his lungs and all...) so all he does is strain really hard and have a striken look on his face. He tries to pull his tube out too - which is natural if you feel like you can't breath (coughing). He is restrained. He HATES that (as we all would). They left him unrestrained the night before, because he was being good - but then early yesterday morning he DID pull out one of his tubes - so he was back on the restraints. Last night when he was pulling against the restraint when he was coughing, Cherry calmed him down and told him that they do that for his own safety - that she didn't want him to hurt himself. I said - "Yes, it is not because of your criminal past." He thought that was funny.

They do NOT have him on the sedative drip - but instead give him injections of - darn! I can't remember what - something like Ambesol or something - but I am sure that isn't it... They say that waking up from that is less jarring than waking up from fentanyl.

Dad wants a shave. When he is awake he wants to scratch his chin. Cherry told me that she intended to do it yesterday when she gave him a bath, but another patient showed up just at that point. Maybe she will be able to do it today.

I take comfort in the fact that Dad didn't remember any of his time in the CICU once he was awake. So - I keep telling myself he won't remember ANY of this miserable experience either.

Oh! Katie noticed yesterday that the tube from his stomach was draining a different color - kind of clearish yellow. When asked, we were told that was a good thing and that they were happy about that. Since th CAT scan showed no blockage, I am hoping that once the pneumonia and infection are cleared up he will be able to get back to mostly normal, pretty quickly.

Keep praying!!! Thanks!
Amy

Wednesday, March 14, 2007

Mom's update from today

Richard had a good day today, praise God. They gave him two units of blood last night and again this morning (Amy said he needed some blood in his medicine stream)..They have pumped him full of fluid so he looks bloated, but his blood pressure is up to a more normal level and this afternoon his heart rate stabilized at a perfect 70--his pacemaker is in control again. His oxygen support is down from 75% to 50%, so all they have to deal with right now is "a really bad pneumonia" according to today's nurse. It is a kind of pneuomina that is responsive to antibiotics, so of course he is being treated with them.

He woke up pretty much a couple of times today and was able to nod his head in response to a few questions, and seemed to understand his blueberry plants arrived yesterday when I told him. He is restrained so he won't pull out his tubes, but his nurse undid them for a while.

Not much more to tell today. I spent about 8 hours at the hospital, and the waiting room is getting old. I did go outside a couple of times to use my cell phone, and it was beautiful and in the 70"s. I have managed to finish "The Great Gatsby" for my OLLI book club and tomorrow I will reread "The #1Ladies' Detective Agency".

I enjoy chatting with other families in the waiting room. There is a couple from Maine whose son got drunk a couple of weeks ago and got in a fight in a bar. He was ejected from the bar, and vomited and aspirated. He was "code" when they got him to the hospital. He is 22 and a senior at Towson University, and they are worried about him having to do another semester to make up time. The father is a redhead ... He (the father) plays the bagpipes and the parents were scheduled to leave for a trip to Scotland. They didn't get trip insurance
because they thought, "What could stop us?" They are a very nice couple. Their son is improving and they are trying to wean him gradually from the drugs they have had him on.

Then there is a lovely African American lady whose 21 year old daughter was hospitalized with a virus and nearly died, but she is finally off the respirator. So hopefully their stories will have a happy ending.

Thank you all for your prayers, and keep them coming! I know they are helping.

Who'd of Thunk it?

Katie and I were digging back through some of the old blog entries to see how he progressed the LAST time we were here. I had forgotten that he had the trache tube until the end of January... It seemed so easy to get back to normal when DAD was back to normal too.

This morning we were told that Dad had a good night last night and they think they may be able to get him off the respirator today. I sure hope so.

Yesterday when Sarah and I were back with him, his PA (Florence) said that they were addressing his blood infection (we concluded that "a little bit septic" meant either his blood infection was mild and will be easily cleared away OR that it was caught early and so they can take care of it) but it would be slow. Sarah and I both just looked at her. When we compared notes we BOTH were debating whether to say "Slow as in FOUR MONTHS slow, or later this week slow?" We didn't say it.

Jeanne - one of his fond nurses from the last time he was here came by yeserday to see him and us. She said she was just talking about Dad on Saturday wondering how he was doing - not realizing that he was THERE! She strongly urged us to have him sent to the second floor when he is ready to leave the ICU and we strongly intend to do that. I think he is a bit of a legend on the second floor (in case you don't remember, that is the Cardiac Unit where he spent most of his four months). The staff on the second floor knows his medical history as well as they know their own!!!

I am off today so I will go in after lunch. Again, Please Pray!!!

Tuesday, March 13, 2007

Deja Vu All Over Again AGAIN!!

OK, so it's decidedly been a while since any of us have posted on this blog--largely because things have been going pretty well, for the most part. Over the past two years Dad has really made a remarkable recovery from the dire situation we were in in December of 2004, but there was this one nagging problem. He had developed a fistula where they had put in his feeding tube, and it had never fully closed. This meant that he was leaking stomach acid and fluids fairly consistently for two years. This had become little more than a nuisance, slowing to only a small amount of seepage, until it became dramatically worse early this year (2007). After much discussion and consultation with any number of doctors, Mom and Dad (with consult from Amy) decided to put off the trip they had planned to Italy and instead go in for ELECTIVE surgery to close up the fistula.

So, last Wednesday, March 7, Dad went BACK to Sinai (what on EARTH were we thinking?) to close the fistula. He had consulted with his cardiologist, Dr. Sher, who said his heart was stable (the wonderful Dr. Hiatt has left the practice to move instead to practice in Annapolis, I believe) enough to handle the surgery, and his GI doctor, Dr. Shear (really, truly--the two, Sher and Shear, should NOT be allowed to work together with such similar names)
performed the surgery. On Wednesday afternoon Amy called me to tell me that Dad's surgery had gone well, to which I replied, "his surgery?" THAT'S how much of a non-event this was supposed to be. Mom hadn't even told me they had definitely decided to go ahead with the surgery, and it was really nothing to be concerned with. He apparently went through the surgery just fine and was going to stay in the hospital until he had passed something (anything, really) to show that his GI tract was working nicely.

AND THEN..

Monday morning I talked to Mom, who said that Dad had managed to fart, but they decided to keep him until he pooped, instead. But still, all was well.

AND THEN...

Flash forward to about 1:00 Monday afternoon when Amy sent me a text to call her when I get a chance. Then she called me again at about 2 and left voice mail stating that Dad had had an episode of heart failure. I'm a bit fuzzy on these details, because I was teaching 30 first graders at the time, and trying not to freak out, so instead, I'm going to simply copy the email Mom sent to Dad's siblings on Monday night detailing our experiences thus far.

"Dick called me this morning and told me that Dr. Shear had decided to keep
him in until his GI tract was completely back to normal. I went in a while
later, and he was feeling unwell and said he had vomited some more this
morning. He was also feeling quite chilly, so I piled on another blanket.
When the tech came in to take his "vitals" we noticed that his ozygen rate
was way too low. She upped his little oxygen tubes back into his nose, and
went to get the nurse. While she was gone his breathing became quite
shallow. The nurse came in and shooed me out for a while, and when I got
back about ten minutes later, his room was full of personnel. I recognized
a respiration therapist from our first stay, the nurse supervisor was in
there and a couple more nurses. They also had sent for an x-ray technician
to x-ray his chest, and an electrocardiogram machine. Then a pulmonary
doctor showed up. I mentioned to them that he did have congestive heart
failure--somehow, none of them was aware of that. They decided to send him
to the ICU and entubate him. I trailed along down to the fourth floor on
the elevator with them, and the nurse practictioner walked me to the
waiting room. Meanwhile, I called the girls--after a while the NP came in
and told me they had sedated him and entubated him, and he said he had
called Dr. Shear, the surgeon, and Dr. Sher, his cadiologist. We were
marvelling at how fast things can change!

A while later Dr. Shear came in to see me and said, "He's going to be all
right." He told me Dick had suffered an episode of heart failure, but his
blood work and ekg showed no signs of a heart attack, He had ordered
heparin in case he had a blood clot, but he thought that was unlikely
because he had been up walking around earlier. He said all his numbers
were back to normal, but that he had sedated him a little further because
he was coughing around the tubes and, maybe, fighting them. He said in the
morning he will order a CAT scan to make sure there were no clots around,
and an upper GI to see if they can pinpoint the problem with getting his
intestines moving. He said his fistula had originated right next to his
pyloris, the narrow area of the stomach that leads to the small intestine,
and that the surgery narrowed it a little, and the stomach was probably a
little swollen, causing the back up. He says it will straighten itself out
eventually.

Sarah came by and she and I went back to the ICU until they kicked us out.
The nurse told me that Dick's watch and wedding ring had been put in a bag
and sent down to security, and there was a to do about getting them back
for me. Later the social worker went down with me to get them, and they
hemmed and hawed and said only after Dick gives written authorization! A
different social worker had sent me a bag with his hearing aid, glasses,
and some other possessions. My coat was still in the closet in his room, so
after a while I went up to get it. In that short time they had cleaned and
mopped the room and changed the bed and the bouquet of flowers Amy had
brought him had disappeared, as well as our unread newspaper. (When you
want housekeeping,you usually have to wait.)

After Sarah and I visited, we went to the waiting room and Katie joined us.
We all went back for the 4:30 visit, and then Sarah and I left, and Katie
waited for Amy and they were going to go in for the next visiting period.
He is very out of it, so I don't know how much he realizes that we were
even there.

Dr. Shear said that by morning they can probably remove the tubes. I
certainly hope so, and I hope they can get him fixed up and able to come
home. That standing over his bed in ICU was deja vu all over again!

Prayers again, please!

Mary"

Unfortunately (and really, needless to say) they were not able to remove the tubes today. After Mom left last night, Dad's blood pressure continued to drop, really quite low, and so they tried giving him a saline line to rehydrate him and hopefully raise his blood pressure. When this didn't work, they started him on a Dopamine line. Sarah called late last night and I called first thing this morning and we found out that the dopamine had worked and his blood pressure had remained stable and at an acceptable level throughout the night. He was responding nicely to stimuli, and they were not giving him the propofol (sedative) anymore. Sounds good, right?

Yeah, right. This afternoon at 2:30, Amy and Mom went back for the visiting time and were shooed out because Dad was having a "little cardiac something." Or, well, that was the translation. Basically, his heart rate had jumped dramatically and they were doing an EKG. His blood was also a little too thin, so they stopped the heparin and started him on metoprol. They were also wanting to do CAT scans on his chest and abdomen. They did a blood culture on him and discovered at this time that he was "a little bit septic." (is that like "a little bit pregnant?") They had already started him on an antibiotic, which they are continuing, to fight the infection. PLUS, they inserted an arterial line so they wouldn't have to keep sticking him every time they needed blood.

In spite all this, he really, truly seems to be doing ok. He was somewhat awake this afternoon, and he was, of course, uncomfortable and in pain, but he was able to respond and he seemed to have some of his good humor still, so I still have a certain degree of hope in me. So as of 9:00 this evening, when Amy and I left, Dad was still in ICU on 70% oxygen. The metoporol had done the trick and his heart rate was stable, and they had kept him off the sedative. He had had some pain medicine earlier in the night, so he was asleep from that. They had stopped the metoporol and restarted a low level of the heparin, and inserted ANOTHER line in him (they called Mom at home for permission for that one). Unfortunately, his blood pressure was lowering at this point, so who knows what tomorrow may bring.

I realize I probably missed a bunch of stuff here, but it's late and I'm tired, and I'll have to come back to edit this at a later time.

Please, please do keep up the prayers and positive thoughts!